Caregiving Monday: 10 Activities for sensory stimulation with dementia

Are you looking for ideas for sensory stimulation with your loved one that has dementia?

Hand massages provides that personal touch and says I care
Hand massages provides that personal touch and says I care

If you’re not sure what I mean, sensory stimulation uses the five senses of sight, touch, hearing, taste and feel to hopefully evoke positive emotions.

I’ve discussed numerous activities with music, but what are some others that can be completed?

  1. Hand massage or shoulder massage—these are always a big hit when we do them in the nursing facility where I work. {touch}
  2. Relaxation satchel—these don’t have to be fancy and if your loved one is higher functioning s/he can assist you in making them. We used clean new or clean socks and filled them about half full with rice.  We then took drops of one essential oil {such as lavender}, added to the rice and mixed to spread the scent.  We then tied the sock off.  The sock could be used to provoke various memories or to calm an agitated loved one {especially if you use lavender}.    {smell}
  3. You can use a keyboard {or look them up online} to play various sounds and help your loved one recognize what they are. Some examples are a doorbell, train whistle, piano, car horn, etc.   {listening}
  4. Ice cream—this is a treat most people love and can evoke positive memories. Use the treat to reminisce.  {taste}
  5. Pictures—looking through pictures, reminiscing and discussing who each person in the picture is helps with memory recall {seeing}

    ice cream prompts positive memories
    ice cream prompts positive memories
  6. Bubbles—many of my residents love the bubbles. They enjoy both watching them and trying to grab them and make them pop.  This can be a lot of fun.  {seeing, touch}
  7. Flower arranging—the resident can look at the various flowers, sort them by color or type and smell the flowers. {seeing, touch, smell}
  8. Herbal tea party—fix a cup of hot tea and honey, milk, or sugar as desired.  Discuss the flavors found in the tea.    {taste}
  9. Shell discovery—hide shells in a small box or pail and have your loved one pick out different ones and discuss their differences. Even if it’s just how small or large they are this can be a fun activity.   {touch}
  10. Check out a DVD from the library of a place your loved one may have visited or lived in. Videos of scenery or animals are a great idea to discuss what s/he is seeing.  You could also look at pictures of these places s/he has and listen to a CD of music or sounds from that place.  {seeing, listening}

What are some sensory stimulation activities you have used?

Caregiving Monday: 10 tips to dealing with sundowning

Sundowning gets everything turned around
Sundowning gets everything turned around as the sun goes down

 

 

If you have a loved one with dementia/Alzheimer’s you know that often sundowning is a common issue.

Sundowning is in the later afternoon and early evening, when the sun begins to set, and the individual becomes more agitates and frustrated.  Often s/he wants to go home, yells, increased hallucinations, begins undressing, has increased confusion, etc.

 

So how do you deal with sundowning?

  1. Turn the lights down and calm the loved one. Often turning on soft music will also help him/her to relax.

    Keeping a track of triggers and what calms agitation is a great idea
    Keeping a track of triggers and what calms agitation is a great idea
  2. On the reverse side, sometimes turning the lights on in the room being occupied helps the loved one.
  3. Hold your loved ones hand and gently talk with him/her. Take the time to reassure him/her.
  4. Take a walk—staying active is good for the body. Even if it is just a few steps or down the hall and back is good for your loved one.  If s/he can’t walk and has a wheel chair, put your loved one around in the chair for a change of scenery.
  5. Calming activities—find activities that are not stressful for your loved one and will keep him/her calm. Depending on the level of functioning, some activities such as reading and watching TV are stressful because they are difficult to follow.
  6. Eat a lighter dinner—larger meals may be heavier on the digestion system or have more caffeine and/or alcohol. Enjoy these foods at lunch and have a lighter meal or snack in the evening.
  7. Keep a daily journal—keep a journal of the daily activities and document triggers and behaviors that create agitation. By keeping track of this information you can identify the triggers and attempt to eliminate or change them.
  8. Limiting sleep during the day to short 20 minute catnaps—this helps the internal body clock to not become so confused
  9. Keep active—during the day keep your loved one active and develop more activities or outings for your loved one {depending on his/her ability}.
  10. Talk to a doctor—most importantly discuss the issue with his/her doctor. Medication{s} may be a factor or could be prescribed to help with agitation and confusion.

How do you deal with sundowning?

Caregiving Monday: 10 Ways to Care for the Caregiver

Caregiving can be very stressful on the caregiver.

Caregivers need time to relax, unwind and have some “me” time.   Balancing self-care is important.

Pamper yourself
Pamper yourself

What are some ways to do this?

  1. Exercise—exercise is good for the body and also helps the mind. Exercise also helps to relieve stress.   Take a walk, go to an exercise class, put in an exercise video, ride a bicycle, take a dance class, etc.  Find something you enjoy doing and can do on a regular basis.
  2. Pamper yourself—take time to pamper yourself whether it is a facial, massage, or mani/pedi.
  3. Create personal space—if your loved one lives with you, find an area in your home that is just for you. An area where you can just rest and relax without the added worries and stress of caring for a household and family.
  4. Make a list—write a list of things you would enjoy doing if you had the time. At least once a month try to pick one item to mark off your list.

    Enjoy some music and go dancing
    Enjoy some music and go dancing
  5. Schedule the time—schedule the time, make sure you have the time off and take the time for yourself. Even if it is an hour or few hours we all need time for ourselves.
  6. Mini Vacations—arrange for a mini vacation. Take a weekend and get away with your husband or by yourself.  Arrange to have someone cover the shift and go somewhere for a break.  You can stay in town, go to a nearby retreat, or go a few hours away.  If possible try to get away on a quarterly or bi-annually place to rejuvenate yourself.
  7. Enjoy a hobby—find a hobby you enjoy and take time for the hobby. This can be anything from reading to gardening to knitting/crocheting to DIY projects to anything else you enjoy.
  8. Music is always good to relax and unwind with. Put on some soothing music or go out dancing.
  9. Develop a routine—find a routine that is best for your needs and circumstances. Find ways to implement time saving techniques into your day.
  10. Journal—journaling your feelings, thoughts and emotions is a great way to express your feelings and be honest with yourself. You can also keep a thanksgiving or gratitude journal to remind yourself of what you are thankful for.  On the more stressful days look back over the journal for a reminder.

How do you find me time amidst your caregiving obligations?

Caregiving Monday: 10 Ways to Use music to calm and minister

I’ve had some residents that would yell, become agitated, or have hallucinations. I’ve discovered I can use music to calm and minister to these residents.

  1. Using songs that are familiar helps the loved one feel comfortable because the song is familiar

    Music is theraputic
    Music is theraputic
  2. Singing hymns is often soothing
  3. Music that is calming or played softly often helps to deal with agitation. I’ve often found that piano music is great for calming the loved one, whether in person or through a CD.
  4. Nature sounds are a great way to calm agitation
  5. Hymns ministers to the soul
  6. Familiar songs can illicit happy memories
  7. Singing is often the equivalent to “praying twice”
  8. Music often speaks to the soul and can be used to help the loved one express themselves
  9. Use songs that help redirect the loved one into other thoughts or memories. For instance, ask “Did Dad sing let me call you sweetheart to you when you were courting?” or “did you see Wizard of Oz as a child?”  or “did you see {name artists} in concert?”
  10. Use movement to music to help the loved one stay active. This can be done in a variety of ways from playing a small handheld instrument to dancing to hitting a ball/balloon to moving with scarves to the music.

How do you use music to calm and minister?

Caregiving Monday: 9 benefits of hospice

 

connecting

 

Hospice is a great resource when the time comes.  They provide equipment, supplies and assistance at no charge.  If you think you need hospice, I’d advice that you speak with your doctor about the manner.   Hospice is usually called in with the decline of that patient from cancer, Alzheimer’s and other diseases.  Your doctor or local hospice can give you more information.

Just remember to be thankful for all that the workers do.

Some of the assistance provided includes a nurse, social worker, aid to assist with bathing and other needs, religious advisor and prescriptions.

What are some benefits of hospice?

  1. They can guide and direct you through the process—they’ve done this before and are able to answer questions you have and direct your next hospice2steps.
  2. They help keep your loved one comfortable—whether at home, in a hospital, at a hospice center or in a nursing facility they will keep your loved one comfortable in these last days. Often this is in an environment that is familiar to your loved one.
  3. Personalized support and care—they have the resources and staff to personalize care that will best benefit your loved one and your family.
  4. Lessens the financial burden—hospice is normally covered by Medicare, Medicaid and private insurance companies and their expenses are often less than a skilled nursing facility.
  5. Respect for the Patient’s wishes—the family can focus on spending time with the loved one and not dealing with a lot of red tape.
  6. Numerous services—hospice provides numerous services such as spiritual care, social workers and counseling.
  7. Gives the patient a sense of dignity—the loved one is able to die with dignity instead of dealing with procedures that prolong life.
  8. Provides family counseling—provides bereavement and grief counseling for the family and other guidance may be available if needed.
  9. Wraps up the details—the hospice nurse and social worker often take care of a lot of the final paperwork that needs to be completed, lifting the burden from the family. This can include calling the funeral home and submitting a death certificate.

 

Caregiving Monday: 9 Things to Remember When a loved one is dying

end of lifeEventually our time as a caregiver will come to an end and our loved one will pass on.  This can be a very tiring and trying time.  This is also a bittersweet time.   The end of a painful journey is coming to an end but you are also saying a final goodbye to that loved one.

This can be a long goodbye at times lasting from a few hours to a few weeks.

So what should you do when your loved one is actively dying?

  1. Make the loved one your priority—take the time to spend with your loved one, hold his/her hand and talk to him/her.

    heaven
    Make the transition as peaceful and soothing as possible. Don’t leave anything unsaid.
  2. Remember hearing is the last sense to go—even if your loved one is in a common or sleeping s/he can still hear you. Take the time to say what needs to be done and make peace.  Don’t regret what is left unsaid.
  3. Cherish the time—cherish these last moments with your loved one. Take the time to reminisce, share memories and tell him/her how much you love him.
  4. Respect his/her wishes—a lot of decisions have to be made in a hurry during this time. Knowing your loved ones wishes help to eliminate chaos and confusion.
  5. Accept your loved one is dying—this is difficult and you will find yourself on an emotional rollercoaster, but allow yourself to feel and be honest about your feelings
  6. Maintain a peaceful environment—keep your loved one as peaceful and calm as possible. Any dissention should be taken out of the room.
  7. Follow your loved ones lead—is s/he discussing seeing a loved one or angels?, does s/he want to discuss about passing over? Go with what is comfortable for your loved one.   Don’t insist, “no you’re not dying” because s/he will know better.
  8. Remember to take time to also take care of yourself during this time.
  9. Stay in the moment—don’t try to get too far ahead of yourself. Take time to cherish the moment and don’t try to overanalyze everything.

 

How have you dealt with a loved one who is dying?

Caregiving Monday: Tips to Consider when Hiring Private Caregivers

You can hire caregivers from an agency or on a freelance basis.  Different individuals have different preferences.  Personally, I prefer the freelance compassion 2basis.  That way if I don’t feel an assignment is a good fit, I have the choice to say no thank you and walk away.

Other people swear by hiring someone from an agency.  You have to decide what you prefer. I know some families that have both freelancers and an agency.

There are pros and cons to either choice.  Research your options to find the solution that will best fit your circumstances.

 

With an agency, caregivers are:compassion

  • Licensed
  • Bonded
  • Insured
  • Often have workman’s compensation coverage
  • Backup care

My best piece of advice is to interview the caregiver and make sure the individual is a good fit with you {you will essentially be the one in charge}, the person being cared for and the overall situation.

When you interview a prospective caregiver make sure you:parents

  • Make sure the caregiver’s physical abilities match your needs
  • Define the duties and expectations of the job
  • Ask about previous experience
  • Don’t be afraid to ask for references

 

What do you look for when hiring a caregiver?

 

Caregiving Monday: Cherishing the Moments

Caregiving can be very taxing and trying at times.   There are times when you just need to get away and have “me” time.

There are numerous times when sacrifices have to be made and we as caregivers have to give up things we really want to do.

Take time to Cherish the moments
Take time to Cherish the moments

When these moments come, I remind myself to cherish the moments I have with my loved one.  I remind myself that she is getting older and we will not have her forever.

This was driven home this past week with the passing of a very dear individual in my life.  I thought about the times we spent together and how I wish I had more of those moments to just sit with him or to sing another song together.

I strive to remind myself to cherish these moments when I am with my grandmother and other loved ones.   I find that I have more appreciation and gratitude when I use this reminder.   This is the time to enjoy the small moments together, as well as to ask questions and listen to stories from their younger days.

When our loved ones are gone all of these opportunities will also be gone.  Usually, we don’t know how much longer we have together.  We can either take advantage of them now or regret the missed chances later on.

How do you cherish the moments together?

Caregiving Monday: Dealing with Violent Outbursts

At times it is difficult for someone with Alzheimers to know how to express themselves
At times it is difficult for someone with Alzheimers to know how to express themselves

 

 

 

 

I had one resident that was normally very sweet, but at times she had nightmares that caused violent outbursts.

Calming her down during one of these episodes was never easy and took a lot of time.  Often it took time that others did not want to dedicate to her.  There have been numerous times when I spent a good hour or more working to calm her down.

So how do you calm down an Alzheimer’s patient that has a violent outbursts?

  1. Remember that often it is the disease and not the individual

    Finding the window to help Alzheimer's deal with their reality
    Finding the window to help Alzheimer’s deal with their reality
  2. Understand the history and background of the person. In this case, we knew the traumatic event from her youth that triggered these outbursts.
  3. Redirect the individual as much as possible
  4. Don’t argue with the person
  5. Allow the individual to talk about the incident if possible and necessary. You don’t want to agitate him/her more.
  6. Beware of triggers. Keep a record of events before these outbursts.  Is there a certain person, incident, time of day, etc. that triggers these outbursts? By tracking any triggers you can work to eliminate them.
  7. Remain calm and don’t take it personally
  8. If nothing else works and the person is in a safe place and not a danger to his/her self, sometimes the best thing is to leave him/her alone {even if you watch over him/her from another room} to come down
  9. Music is often a great way to calm an individual
  10. Pray and quote scripture together or over the person.

I used all of these techniques and in time I was able to calm this sweet lady back and see her return to her normal self.  What works with one person may not always work with another, but in my personal experience I found that singing and then praying together were the most calming tools I could use.

Of course, I had to talk with her until she was calm enough to sing and pray with.

How do you calm an individual that has violent outbursts?

Caregiving Monday: Grief in Alzheimer’s

Recently a dear friend of mine with Alzheimer’s mourned the loss of his wife.  He would often twists his wedding ring when thinking about her and asks questions.  There were times when he was quiet and other times when he had bursts of anger.  All of this is a natural part of the mourning process.

Alzheimer’s does not stop our loved ones from grieving when they lose a loved one, whether it is a sibling, spouse, or child.grief2

So how do we deal with this grief?

  1. DO NOT keep reminding them if they don’t remember.
  2. Allow them to talk about the loved one and share memories.
  3. Realize that any anger or showing out may be due to the grief.
  4. Try to redirect them if they become too agitated.
  5. Celebrate the life of the loved one.
  6. Understand that they will feel your loved one needs to grieve and will express the same steps in the grief process {denial, anger, guilt, sadness, acceptance}.
  7. Recognize signs, times of day or situations that may trigger the grieving process {especially anger and guilt steps}.
  8. Understand that some bonds and intuitions are strong that even without telling your loved one s/he may “know.”
  9. Remember that you are grieving also {most likely} and grieving together may be good for both of you.

Grief takes time for everyone to experience.  We’ve got to remember that the same is true for our loved ones with Alzheimer’s.  However, if they don’t remember, don’t keep bringing it back up.  Doing so will be like hearing the news for the first time each time.

How have you deal with grief?

Caregiving Monday: The Power of Music

Time and time again I’m amazed at the power of music.   I’ve shared many times how I believe this is the universal language and that still rings true.

So why do I believe this?

music soothes
music soothes

Well, let’s visit the Alzheimer’s unit and take a look:

Resident #1 has terrible flashbacks from a traumatic event as a child.  Talking only agitates her more in these moments.  However, as soon as I begin to sing she calms down.  Before the end of the song she is singing a-long.  After we finish the sing a-long, she sits quietly and is able to carry on a conversation.

Resident #2 is depressed.  As soon as I begin to sing, I see her eyes light up.  By the time we finish singing, she is clapping her hands and singing along.

Resident #3 ask me to sing or motions towards the piano every time I walk into the room.  Piano music and sing a-longs calms his agitation.

Resident #4 cannot speak, however every time I sing a certain song she has tears in her eyes.  Once again I’m reminded how this song touches her heart.

Resident #5 repeats the same phrases from a hymn over and over every time you speak with him.  That’s okay, because this song has struck a chord with him and we will continue to sing the song with each sing a-long.

Resident #6 does not speak, but when we begin to sing “You are My Sunshine” or “Jesus Loves Me” she can sing every word.

There are numerous ways to enjoy music. Dancing is one such way.
There are numerous ways to enjoy music. Dancing is one such way.

Resident #7 easily grows confused and frustrated in trying to recall the information she is seeking.  However, when we begin to sing she can sing the words to every hymn and oldies song.  Her husband is so amazed he ask her to sing every time he visits.

Resident #8 doesn’t enjoy singing, but brightens up when we use the hand bells and wants to play the bells.

Resident #9 also isn’t a singer, but enjoys moving to music when we toss a balloon, move with scarves or dance to music.   She is proof, that there are other ways to implement music other than just through singing and playing.

Resident #10 is easily agitated and does not enjoy a lot of music.  She will call out and disrupt her peers.  However, putting on a CD of soothing music calms her down and she quickly quietens down.

In what ways have you used the power of music to help someone that has dementia?

 

Caregiving Monday: Reasoning with Alzheimer’s

often Alzheimer's patients suffer from hallucinations and paranoia
often Alzheimer’s patients suffer from hallucinations and paranoia

For a while, GG had hallucinations, until her medicines were changed.  We tried to explain to her that although we believed her, we could not see the children she saw.  She would look at us like we’d lost our minds.  In time, we discovered sometimes the best thing was to go along and talk with the children and tell them to leave.  This seemed to suit her much better.

Alzheimer’s is a very difficult disease on everyone involved.  Hallucinations, past memory regression, and an alternate reality will often appear to the patient.   As caregivers we often want to reason with them, but this often causes our loved one to become more agitated, frustrated and even explosive at times.

One thing I learned in my training as a caregiving is telling “Therapeutic lies.”  The term is defined as the practice of deliberately deceiving patients for reasons considered in their best interest.” {from PsychiatricTimes.com]

So how do we reason with Alzheimer’s?

Finding the window to help Alzheimer's deal with their reality
Finding the window to help Alzheimer’s deal with their reality
  1. Pick your battles—is this really worth fighting over?
  2. There is no need upsetting the patient—if they think a parent or sibling is still alive go along with it. Maybe use generic answers such as “we’ll see them later, they are working, etc.”
  3. If telling the truth is going to be more detrimental or traumatic to the individual
  4. Try redirecting the individual and getting their mind on something more positive {or different}
  5. Understanding when the patient may need to talk about an issue and listening, such as when they are grieving.
  6. Try to use methods that will relieve anxiety and stress
  7. Ask questions to gain more information. For example if the individual thinks she is 21 and single, ask questions about her life at that time {what does she enjoy doing, is she dating anyone, what year is it, who does she live with, where does she work/go to school, etc.}.  This gives a glimpse into her lives back then and you’ll be amazed at what you may discover.
  8. Music is often soothing and may calm the patient
  9. How can you handle a situation without demeaning, hurting or embarrassing the patient?
We have to find a new normal
We have to find a new normal

Remember, that often it takes trial and error to discover what works.  When dealing with this disease you have to think fast on your feet.  What works one time may not work the next.  I’ve even discovered that what works for one individual may not work for another.

The main thing to remember is that when reasoning with Alzheimer’s strive to calm the patient and help him/her deal with the stress and frustration that is being felt.

How have you reasoned with Alzheimer’s?

Alzheimer’s Awareness

Alzheimer's awareness

 

Sunday is the longest day of the year and the Alzheimer’s association is asking that everyone wear purple to raise the awareness of Alzheimer’s.

Have you taken the pledge to raise Alzheimer’s awareness?

How has Alzheimer’s effected your life?

How do you raise Alzheimer’s awareness?

Caregiving Monday: Celebrating 100 Years

Living 100 years is a major accomplishment.   The history, heartache and joys that have been experienced during this time are numerous.   I love to talk with those that have made reached this milestone {and those nearing it by 10-20 years}.  There is so much history and life lessons that can be learned.  If you know anyone close to such a monumental celebration, I encourage you to take the time to record a living history {record their memories and history}.

We’ve all seen on the Today Show where those celebrating 100+ years are recognized and honored.  But, how do they go about contacting the Today show and other agencies for this honor?

Below are some contacts to help:

The Today Show:  Please contact 6-8 weeks in advance

Williard Scott of The Today Show
Williard Scott of The Today Show

Send a written request with a photo, birth date, something unique/personal about the person (ie. hobbies, accomplishments) and a contact telephone number to (centenarians are picked randomly to be recognized on the show):

Willard Scott Birthdays TODAY show, NBC News 4001 Nebraska Avenue NW Washington, D.C. 20016 or email the information to: willardscottbirthdays@nbcuni.com.

According to their website: “If your grandmother is chosen, you will receive a phone call before the show airs. Otherwise, she will get a birthday letter from Willard Scott.”

 

National Centenarian Awareness Project

Form at http://www.adlercentenarians.org/ncap_centenarian_recognition.htm

 

President of United States

Online form:  https://www.whitehouse.gov/contact/presidential-greetings-request

Mailed:  White House Greetings Office, Room 39, Eisenhower Executive Office Building, Washington, DC 20502. birthday card

Fax:  202.395.1232.

Include the full name(s), address and title (Miss, Mrs., Ms., Mr.) of the recipient, plus the date and event being celebrated. Also, include your full name and phone number in case there are any questions.

Please contact a minimum of 6-8 weeks in advance to receive on time.

 

Greetings From Past Presidents

  • Bill Clinton, Correspondence Director, Office of William Jefferson Clinton, 55 West 125th Street, New York, New York 10027, (f)212-348-9245
  • Office of George Bush, P.O. Box 79798, Houston TX 77279-9798
  • Jimmy Carter, Carter Center, 1 Copenhill, 453 Freedom Pkwy., Atlanta, GA 30307.
  • George W Bush, Office of George W Bush, PO Box 259000, Dallas, TX  75225

 

For residents of UK/Canada the Queen of England will send an acknowledgementcard from Queen

Send copy of birth certificate/proof of age to:

Assistant Private Secretary
Buckingham Palace, London
SWIA IAA

Write “Anniversary” in top left hand corner of envelope

 

Don’t forget to check with your state.   This information varies by state, but check the Governor’s office, Lt. Governor’s office or if there is an Office of Aging for the State.

In South Carolina, we have the SC Centenarian Society   form at http://ltgov.sc.gov/Programs/Documents/CentenarianForm.pdf

 

Other sources to consider or check with: {this can also be used for 50+ Anniversaries}100

  • Local newspaper
  • State newspaper
  • Society/organization individual was involved with
  • Church {they may want to honor the individual or write up an article for their newsletter}
  • Nursing facility {if they are in a nursing facility–they may throw a party or allow you to throw one.  Also, if they have a newsletter or announcement screen they may be willing to post the information.}

Please remember to give plenty of notice to any sources.   Also, the more accommodating and willing you are to provide requested items {information, memories, pictures, etc.} will be greatly appreciated.

What other sources do you recommend?

Caregiving Monday: Dealing with Trauma

The love of family can make a difference
The love of family can make a difference

 

 

Alzheimer’s is a terrible disease and there are times when traumatic moments and horrific memories return to traumatize the patient.

So what are some ways to calm the patient?

Music has a healing power
Music has a healing power

 

  1. Redirect the patient and see if you can get their mind on something else
  2. Allow the patient to speak about the incident—some need to express their feelings and what was experienced in a safe and loving environment. Never judge or push for information, but allow the patient to share what s/he is comfortable with.
  3. Music—sing a song or hymn that is comforting to the patient. If you can’t sing, put on some soothing music, whether it is a collection of hymns or instrumental {especially piano} music.
  4. Pray—if the patient is a praying person, ask them to pray or if you can pray with them. I have seen amazing changes happen with prayer in a person with Alzheimer’s.

    Prayer changes things
    Prayer changes things
  5. Love—sometimes the patient just needs to feel loved and safe
  6. Touch—the power of touch is powerful. Often a hand on the shoulder or a pat of the hand does amazing wonders in soothing a patient that is troubled.  This is a comforting act to him/her.
  7. Family—sometimes seeing a familiar face is all that is needed. I have seen Alzheimer’s patient’s entire demeanor change when they are able to see a spouse, child or grandchild.  This brings comfort and assures the patient that s/he is not alone and not forgotten.

What has worked for you in dealing with traumatic situations in an Alzheimer’s patient?

Caregiving Monday: It’s Not Personal

When dealing with Dementia/Alzheimer’s patients we get a variety of responses.

One moment the resident may be the sweetest and calmest person, and a moment later s/he may be cussing you out.

This is not personal.  This is not a personal attack on the second party in any way.missing puzzle

The important thing to remember is this is the disease.

So how do you respond?

  • First and foremost, with love—stay calm and answer in a calm, loving manner
  • Step away if the stress of the moment becomes too much
  • Do not take it personally
  • Observe the environment—is there something that may be setting the individual off? Knowing the person really helps to understand the triggers.  Does noise irritate the person, was there a bad night, is there a person that sets the person off, etc.
  • Soothe the individual. I have found that music is always a wonderful healer, but sometimes you have to try different techniques to find the right one for that individual
  • Check with your physician to discuss medications and the effects on the resident
  • Take away any triggers—if possible

Above all, remember this is the frustration and disease speaking and not your loved one.

How do you deal with outbursts?

Caregiving Monday: When a Loved One Declines

Seeing a loved one decline is always difficult, but especially when there is a significant decline in a short time.

This realization is often difficult for family members to accept.

Questions begin to be asked such as:

  • Why did we not realize?end of life
  • How did this happen?
  • What do we do now?
  • What could we have done differently?

 

So how do we deal with a dramatic decline in a loved one?

  1. Accept that this is the new reality—that is much easier said than done, but things are not going back to where they used to be.life ends
  2. Ask for prayer from family and friends. Asking for prayer never hurts, but also think carefully before placing information on social media sites.
  3. Understand that only God knows the day, time and hour a loved one is called home. That could be on that day, a month later, a year later or twenty years later.  God will provide the comfort and strength necessary to walk the journey He’s taken you on.
  4. Take the necessary steps to make the loved one as comfortable and well cared for as possible.
  5. Bathe the situation in prayer. Every situation is different and sometimes the situation is drawn out, while at other times decisions have to be made quickly. God can provide the guidance, wisdom and comfort that is needed during this time.
  6. Contact the necessary friends and family members that need to be notified. Even if death is not imminent, they may want to visit and enjoy the time they have together.
  7. Discuss the possibilities for the worst case now, instead of having to make split second decisions later on. Determine what the person being cared for wants and his/her wishes for the last stages of life, as well as funeral plans.

What plans have you made for the future?

Caregiving Monday: Dealing with Vacation Time

With the summer quickly approaching, vacation time is also on the way.

As a caregiver, extra plans have to be made.

One thing the caregiver has to decide is what will happen with the person they are caring for.

So what are some options?help

  1. Take your loved one with you—this is always an option, but is this really what you want? Do you need a break from caregiving?  Is your loved one up to the travel and changes that are involved with vacation time?
  2. Call in reinforcements—are there others that are involved with the caregiving of this individual? Are there other siblings that can step up and help out while you are away?  Call on them and ask if they are able and willing to help.   One thing to decide is how you are going to react in advance if they are not willing to be of assistance.
  3. Sitters—check with a local agency or freelance sitters to inquire about their rates and availability. Be specific about how often you need assistance, for how long and what you would like to see accomplished during this time.  Is help needed with bathing or cooking or cleaning or transportation or all of it?  Be sure to let the sitter know up front.
  4. Respite Care—many nursing facilities have openings for a week or two, to provide respite care {or a rest} for the caregiver.
  5. Neighbors and friends—if none of the other options are available, try asking friends and neighbors if they would be willing to help out while you are gone. Many will be happy to help if asked.

 

How do you deal with vacation time?