Importance of Caregiving Support groups

Caregiving can be a very lonely task.  After all you spend hours or days with the person being cared for.

During this time family, friends and co-workers may not understand all of the strain and frustration you feel.

These groups are important because they provide an outlet of discussion with other likeminded individuals.  These individuals are experiencing the same concerns and struggles and need to vent or talk through their problems. support

However, there are groups where you can find support.

A few places to find support include:

  • Alzheimer’s organization
  • Church support groups
  • Facebook groups
  • Online support groups
  • Workplace support groups
  • Meetup Groups

Other places to check include:

  • Doctorcaring for caregiver
  • Local Agency on Aging
  • Family caregiver support program
  • Skilled nursing or rehab center

Where have you found caregiving support?

Alzheimer’s is not dumb

Working with Alzheimer and dementia patients, I often witness family and/or staff talking about a person right in front of them.

Things will be said that are demeaning or degrading to the person.

Those with Alzheimer's are more perceptive than we give them credit
Those with Alzheimer’s are more perceptive than we give them credit

Often the attitude is that because the person has Alzheimer’s or dementia, then s/he does not understand what is being said about them.

I’ve discovered through observing my residents that this is not often the case.

Yes, there are times when they may not understand.  However, more often than not they understand more than they can express.  They understand exactly what is being said about them.  This can also show the person how those speaking really care about them.

So as with all things be careful what you say.  If the individual did not have Alzheimer’s, would you be saying these things directly to them?

8 Simple Activities for Alzheimer’s

Even simple things are enjoyable for someone with Alzheimer’s. Often they can do these and there is not a lot of stress or expectation in these activities.

This can include:

Many Alzheimer's patients find joy in baby dolls
Many Alzheimer’s patients find joy in baby dolls
  1. Singing a song
  2. Clapping hands
  3. Playing with a baby doll
  4. Having an ice cream cone
  5. Enjoying a hand or shoulder massage
  6. Having a special treat
  7. A visit from a loved one
  8. Time with a child or pet

While this may seem very simple for us, for a person with Alzheimer’s it can be a big deal.  Such a simple act can be very special to our loved one.

What simple acts are special for your loved one?

9 Tips for Hiring caregivers

Hiring good caregivers can be a challenge.

A few things you can do is:

Make the right decision in hiring a caregiver
Make the right decision in hiring a caregiver
  1. Make a list of what is needed and expected
  2. Interview the candidate
  3. Determine if the person will be a good fit with your loved one
  4. Know what you can afford to pay
  5. Determine other responsibilities person has outside of work
  6. Check background and references
  7. Make sure can work hours needed
  8. Check for any possible irritants {such as smoking, etc}
  9. Go with your gut

What questions do you ask when hiring caregivers?

13 Ways to Reduce Stress

Last week, I discussed the stresses of caregiving and how it can affect your health.

So what are some ways you can reduce stress?

Find a way to relieve stress
Find a way to relieve stress
  1. Take time for yourself
  2. Make list of what needs to be done
  3. Prioritize
  4. Be willing to say “no”
  5. Ask for help and then accept the help
  6. Stay physically active
  7. Keep a sense of humor
  8. Research caregiving resources in your community
  9. Don’t feel guilty
  10. Don’t try to be “perfect”
  11. Join a support group
  12. Make time for family and friends
  13. Above all, make time for yourself

 

How do you deal with the stress of caregiving?

9 Symptoms of Caregiver Stress

Caregiving is very stressful for caregivers.

Caregiver stress can lead to:

Caregiving is stressful. We need to remember to care for ourselves.
Caregiving is stressful. We need to remember to care for ourselves.
  1. Exhaustion
  2. Anger
  3. Guilt
  4. Loneliness
  5. Depression and anxiety
  6. Health issues
  7. Higher levels of obesity
  8. Weaker immune system
  9. More long term medical problems

As a caregiver, it is important to remember that you matter.  We must take care of ourselves in order to properly care for our loved ones.

Dealing with Family issues

Time and again I hear about various family issues with families.

This can run the gamut from one child carrying the burden of caregiving alone to money and legal issues.

Caregiving is very tiring and taxing.family quote

On top of this many caregivers are working jobs and caring for families in addition to their caregiving duties.

Caregiving takes a village.  The more people on your team that can share the burden, the easier it is for everyone.

However, that is seldom the case and often one or two people are left with the burden all on their own.

So what can you do if you need help?

  • Be honest and ask
  • Explain the situation and needs to others
  • Hire a team if you’re able to

Sadly, there are times when no solution is found between other parties.  I hear stories where this is the case on an almost daily basis.

I wish I could provide a solution.  However, the only answer I have is to pray and seek God’s guidance.

7 Ways Personality emphasized in Alzheimer’s

I’ve discovered that with personality traits and characteristics from childhood and adulthood are often intensified and emphasized in dementia and Alzheimer’s patients.

These can include a variety of personality characteristics.  Some that I’ve seen are:personality

  1. Wanting attention
  2. OCD tendencies
  3. Meekness
  4. Neatness
  5. Sweetness
  6. Irritations
  7. Food likes and dislikes

In what ways have you seen the personality emphasized due to dementia?

5 Simple reasons Alzheimer’s are happy

We’ve all heard the saying the simple things make us happy.

This seems to even be more true with the elderly.connecting

They don’t care about how much clout a person has, the money in the back, the reputation, etc.

What they know is:

  • They are loved
  • They are wanted
  • They are protected
  • They are care for
  • They are safe

What little things make your loved one happy?

10 Memory Stimulating exercises

Stimulating the mind and memory are great tools for dementia and Alzheimer’s patient.  Even in the most advanced stages they can do simple task.

The interest and ability of each person is different, however some suggestions are:

Music has a healing power
Music has a healing power
  1. Checkers
  2. Tic tac toe
  3. Cards—Uno, Old Maid, etc.
  4. Puzzles—even if it is the simple 10 piece puzzle
  5. Word Search Puzzles
  6. Fill in the Blanks—we will take a familiar hymn, song or piece of scripture and remove 1-2 words to allow the patient to fill in the blanks {ex. For God so loved the {world}; How {Great} thou art; Jesus love {me}}
  7. Music—often songs bring back memories of days gone by
  8. Computer based games such as Smartbrain
  9. Dominoes or Qwirkle
  10. Household Chores—this is great for more advances cased. Simple task such as folding socks or washcloths, planting seeds, mixing ingredients, dusting, etc.

 

What exercises do you use to stimulate the mind?

Interruptions in daily routine

Interruptions frustrates routines
Interruptions frustrates routines

Many people enjoy their routine, whether they are children, adults or the elderly.

Sometimes interrupting a daily routine can be confusing for the elderly.  This is especially true with dementia and Alzheimer’s patients.

This can lead to increased agitation and confusion.

Make a note of when there is increased agitation and confusion.  Are there interruptions that brought this about?

How do you deal with interruptions to your routine?

The importance of Fellowship and Outings in the Elderly

Just because we are getting older, does not mean we don't need fellowship with our peers
Just because we are getting older, does not mean we don’t need fellowship with our peers

We all need fellowship with our friends and peers.

I’ve met some families that long to constantly take family members out.  I’ve met other family members that refuse to take their family members out, although it is enjoyable for that person.

There are instances when it is not possible to have outings, such as if the person is bed bound.

However, short outings are encouraged for the elderly.

Doing so gets them out and about and allows them to interrupt with others.

Socialization is important for the elderly.  This is one of the benefits of adult day care, retirement centers or skilled nursing care.

However, even if a person is home bound short outings are still good for them.

These can include:

We all need fellowship
We all need fellowship
  • Going out to eat
  • Riding into town and back
  • A walk through nature {or a ride}
  • Having a friend visit
  • Family gatherings
  • Doctor visits
  • Personal Care Outings {Hair, Nails, etc.}

How do you help your loved one have fellowship and outings?

The Elderly Need a Lot of Sleep

Working with the elderly, I’ve discovered one thing.  They all need a lot of sleep.

The amount of sleep is different for each person.

There is no set age when this sets in.

The elderly need a lot of sleep
The elderly need a lot of sleep

There are numerous factors that play into these factors, such as

  • effects of medicine
  • diseases they have been diagnosed with {Parkinson’s, Alzheimer’s, etc}
  • activity level
  • age
  • the more activity wears them out the more rest they usually need {for example if just getting in and out of car or going out to eat is too much, then they may sleep for a while upon return}

Just as young children need a lot of sleep, so do the elderly.

They need the time to rest and rejuvenate their system.

There are times when their agitation or moods may be enhanced due to the lack of rest and sleep needed.

How much does your loved one sleep?

7 Ways to Calm Agitation in Alzheimer’s

I shared recently about how Alzheimer’s patients can become fixated on various things.

Alzheimer’s patients can easily become agitated.

Calming others is never easy
Calming others is never easy

So what do you do when nothing works to redirect your loved ones?

  1. Use a lot of patience
  2. Try a change of scenery {go to another room or outside}
  3. Continue to keep trying to redirect and divert attention
  4. See if softly singing or playing a CD will help
  5. Walk out of the room and see if being left alone helps {sometimes this works and sometimes it doesn’t}
  6. Pray for patience and guidance. I’ve even prayed over a person and find that this often works.
  7. Create a calm environment and allow to get some sleep. This often leads to increased agitation.

How do you calm agitation when nothing else works?

Ways to Volunteer at a nursing home

volunteer

 

 

Are you looking for a way to volunteer?

Sadly, senior adults are often over looked when it comes to the volunteer pool.

Working in a skilled nursing facility I can assure you we are in great needs for volunteers.

Some ways you can help are:

Senior adults love to have someone to talk with or assist them in various tasks
Senior adults love to have someone to talk with or assist them in various tasks
  • Performance {music, dance, etc}
  • Present a class on a hobby or interest
  • Help with special events
  • Offer to help with regular activities {Bingo, various games, etc}
  • Read to residents
  • Help residents write a letter
  • Bring a Pet {you will need to provide verification of shots}
  • Beauty Regiment {Polish Nails, Hand Massage, Make up}
  • Provide books and magazines
  • Provide supplies for arts and crafts
  • Plant and maintain a garden
  • Donate supplies to be used as a giveaway {Mystery Auction, Bingo Store, Let’s Make a Deal, etc.}

Contact the activities office and inquire about ways you can help out.

An hour a week or a month is a huge help.

How do you volunteer with seniors?

Dealing with Hallucinations in Alzheimer’s

I had one lady that often saw people were not there.  There were times when she would have conversations with them for hours on end.

Often these conversations were very informative and entertaining.

Those with dementia often experience hallucinations
Those with dementia often experience hallucinations

Hallucinations are common for those with Alzheimer’s and dementia.

There are a variety of reasons but the most common are the interaction of medicines and the disease.

However, I’ve also spent enough time with Alzheimer’s patients that I believe they often see things we can’t see.  For some reason, they’re able to see the veil between our world and the spirit world that is hidden from the rest of us.

I’ve seen some family members and CNAs argue and try to convince the resident that no one is there.  However, this often leads to more agitation.

So instead, just listen and love your new one.

Who knows what new friends your loved ones may introduce you to?

How have you dealt with hallucinations in a loved one?

Loss of independence in Old Age

“Growing old isn’t for sissies,” was a common phrase Papa said.  I’ve also heard this from others.

Growing into old age is never easy.

The common struggle I’ve seen is the loss of independence.

Giving up our independence is never easy. One example is losing driving privileges.
Giving up our independence is never easy. One example is losing driving privileges.

This means:

  • Giving up driving
  • Unable to live alone
  • Unable to handle finances
  • Often a change in living arrangements
  • Loss of cooking privileges
  • Loss of other privileges or interest

Five years ago, GG quit driving, but she still talks about how much she misses it.

We can’t understand until we are in their shoes.  However, I know even now how much I’d dislike having these restrictions placed on me.

How has your loved one dealt with the loss of independence?

When Alzheimer’s Becomes Fixated

Recently I sat with a man that had Alzheimer’s.  One of the side effects of the disease that was a common occurrence was that he became fixated on

People with Alzheimer's often become fixated on certain things
People with Alzheimer’s often become fixated on certain things

things.

So what do you do when your loved one becomes fixated?

  • Try to divert attention
  • Try to change the subject
  • Change the location of scenery—such as another room
  • Sing a song
  • Read a story
  • Discuss a memory
  • May be tired and need to sleep

As with all things with this disease, sometimes these tips work and other times they don’t.

What does your loved one become fixated on?  How do you distract him/her?